Welcome to The Epileptic Man: my name’s Joe Stevenson, I’m 28, and I’m the blog writer for this website. I was diagnosed with epilepsy at the age of 5.
The idea of my blog is simple: I want to offer people weekly updates on what’s happening in the world of epilepsy. By signing up to my email list, you’ll receive at least one blog post per week that could give you recent epilepsy news, offer useful advice, remind you of key events due, or include interviews with other sufferers talking about their life with the condition. At the end of each month, I also like to squeeze in a review of how my epilepsy-prone personal life is unfolding as a whole.
My need to set up this blog has progressed over the past eleven years. Up until I was around 17, I lived in Sale, Greater Manchester, with plenty of friends and managed very little problems caused by the condition. However, after leaving high school things took a turn for the worse, and I had to learn a lot more about what epilepsy is and how it can control your life.
You could already be well aware that there’s plenty of useful websites to browse if you’d like to know more about epilepsy. If you’re living in the UK, then Epilepsy Action, the Epilepsy Society and Epilepsy Research UK are key British charities that provide a lot of good information about the disability. I’ve also come across the charity named as Epilepsy Foundation, who seem to solve a fair few problems in America.
These charities offer what they should by being useful organisations for me and many others. But one thing I’ve also found is that pertaining an overview of what I’d like to know about epilepsy isn’t available through one website in particular. There are things to be known from around the world – and these things can offer positivity to people when epilepsy so often collides with them within their life.
As further epilepsy research continues to take place, positive results are being made. New technology is currently being developed and could provide people with an easier lifestyle in the not so distant future. People with epilepsy are finding ways to beat the difficulties set by their disability and still achieving great, memorable things.
Without a doubt, knowing more about what’s happening can give me a boost. Simply knowing that other people are experiencing the same things I do is quite a relief. It reminds me that I’m not alone.
In March 2017, Epilepsy Action did a study to find that 60% of people with epilepsy have gathered feelings of loneliness at some point in their life due to the condition. Over previous years, I’ve struggled to keep myself from feelings of seclusion as well, and because of this, finding a way to unite people with epilepsy sounds very appealing to me.
General practitioners, epilepsy nurses and epilepsy specialists will often understand the condition fairly well, but by meeting and talking to fellow sufferers, we can only meet the people who truly have experience and discuss our issues in more depth. One goal that I’d love to achieve is to start a social network and meet more people with epilepsy on a one-to-one basis. I also want to include the people who technically don’t have the condition, but still, have to see those close to them deal with it every day with a sense of emotion.
By doing this, I firmly believe that we’d be able to start showing those who lack epilepsy awareness who we are, what we manage, and why we need them to start offering a little more support.
Although this social network doesn’t exist yet, my plans to help build it will never be forgotten. Raising epilepsy awareness is one of the primary focus points on this website, and if I’m going to help do this, then I’m going to need the help of any people who understand the negatives of epilepsy and are willing to chip in.
If you want to help build more awareness of epilepsy, then all I need you to do is subscribe to my weekly blog for free. You’ll be helping to build up a bigger chain of followers, so I can start to exploit my ideas to others and build up social networks in the future. I also promise you’ll receive all of the articles I mentioned earlier, and as time continues, I’ve got plans to write a useful e-book about life with epilepsy as well. This e-book will be free to my followers and should give my perspective on how people can look to manage epilepsy in modern day society.