Welcome to The Epileptic Man – whether you’ve got epilepsy or not, you’re quite welcome to rest here while I tell you what this website is about.
My name is Joe Stevenson, I’m the writer around here and I’ve got epilepsy. Epilepsy was a bigger pain for me in the past, but after spending my time dealing with the damages that have occurred I feel a need to express my thoughts to a willing audience.
I was born in Manchester, UK, in 1989 and brought up in Sale, Greater Manchester. When I was 5, I was diagnosed with epilepsy, but back then it was all well-controlled by a little medication. As a child, I lived a pretty healthy lifestyle. I’d say I was quite smart, pretty popular and happy enough with my life as a whole.
However, when I was about 17 things took a turn for the worse. I started having a lot more epileptic seizures and needed to increase and test a lot of new AEDs (anti-epileptic drugs). This is a difficult process for anyone and it quickly led me towards a more difficult lifestyle. My new AEDs had side-effects that caused many problems, such as short and long term memory loss, fatigue, increased stress and depression.
But I picked myself up. It took about seven years to kill my depression, but I did it. I’m not totally free of epileptic seizures, but by taking my AEDs and managing the stress that can set them off I’ve found myself keeping them away for weeks on end. If I was a Buddhist, I could well live in peace with the monks in Asia and everything would be just fine.
But that’s not really my style. After making so much effort to find my feet, I’m looking to share my stories, highlight the problems with epilepsy and give advice to anybody dealing with these problems today.
Epilepsy is a disability and tens of millions of people have it worldwide. For me, it only seems shy. If it had a bigger voice it could be understood in much greater depth.
I can’t claim to be the epileptic Messiah – I’m only 28 and so bad at general knowledge – but I’ve learnt a lot from my trips and falls. I’m an over-thinker, and it’s time for me to write some stuff down.
Soon I should be able to offer you a weekly update via email on what I’ve got to say every week, so feel free to revisit this website that I’m looking to develop over the next month or so.
Thanks for reading.